At our 20 week scan, we were told there had been an abnormality found on our baby boy’s brain. After further scans, it was discovered our baby is suffering from a midline arachnoid cyst. Whilst arachnoid cysts are fairly common, midline ones are not.
We were told our son would suffer from some form of disability, to what extent we did not know. We were also told he would require brain surgery when born. There was the possibility the cyst would grow to a size that his brain would not be able to develop and, if that was the case, he may not have been able to see, hear, move unaided, been prone to seizures and may have died not long after birth.
We were not able to find much information about this type of cyst so therefore started this blog as a way to deal with our emotions and to try and reach out/help others who may be experiencing the same.
Fortunately the outcome was more positive. Sebastian had two lots of surgery and now has a shunt fitted. His development is slower than normal but we are getting there in small steps.
Follow us on our adventures and on Sebastian’s progression.
To get in touch, please email firstname.lastname@example.org xx