About us

At our 20 week scan, we were told there had been an abnormality found on our baby boy’s brain. After further scans, it was discovered our baby is suffering from a midline arachnoid cyst. Whilst arachnoid cysts are fairly common, midline ones are not.

We were told our son would suffer from some form of disability, to what extent we did not know. We were also told he would require brain surgery when born. There was the possibility the cyst would grow to a size that his brain would not be able to develop and, if that was the case, he may not have been able to see, hear, move unaided, been prone to seizures and may have died not long after birth.

We were not able to find much information about this type of cyst so therefore started this blog as a way to deal with our emotions and to try and reach out/help others who may be experiencing the same.

Fortunately the outcome was more positive. Sebastian had two lots of surgery and now has a shunt fitted. His development is slower than normal but we are getting there in small steps.

Follow us on our adventures and on Sebastian’s progression.

To get in touch, please email bumpsbrain@gmail.com xx


2 thoughts on “About us

  1. Hi, I’ve had a rare epidermoid brain tumour and like you I struggled to find information. Mine was at my brain stem and encased 11 out of 12 nerves that your brain uses to function. I think epidermoids and arachnoid cysts are just as rare. My surgery was 2011 and I am totally normal now. Anything you wast to ask me feel free.

  2. Just sending lots of love to you. I can’t offer any words of comfort or reassurance because I’ve never been through anything like this, but I’ll be thinking of you and your precious bump.

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