Little Miracle & Little Superstar

Seabass has been back all afternoon following his op. All went well as far as we know. Apparently there was a lot of pressure in his head so it was good the shunt was fitted today.

He has been a little cranky – but who wouldn’t be after anaesthetic and 3 holes cut in them?! He is moving his eyes and looking around a lot better due to the relief in pressure. Hopefully once all the drugs wear off, he’ll feel a lot better in himself.

The staff here have been brilliant. They can’t do enough for you and they’re all so friendly. I’m thinking of moving in.

Hopefully we’ll be leaving tomorrow, then we’ll come back next week for a check up.

After our 20 week scan we were asked if we would consider a termination, I’m so glad we were dead against it. Our little man has been such a fighter and so much stronger than we thought he’d be. He’s done us all proud and hopefully will continue to keep being our little miracle.

We love him and Tinkerbell lots and can’t wait until they can play together. She’s so good at trying to help look after him. She’s a little superstar.

I’m glad we have our Little Miracle and Little Superstar.


Ready for Theatre

The little man has been fed and washed, so he’s ready for Theatre in an hour’s time.

He looks so little and helpless lying in his theatre gown. It seems a little too big for him, as if it shouldn’t be him that’s wearing it – he’s too small for surgery.

I’ll be keeping away from the Theatre this time, I found it too distressing watching them put him to sleep. I wanted to push them off him. He’ll be going down with his dad, hopefully he’ll be less wimpy than me.

Fingers crossed for Seabass please xx

Not gone as planned

Morning everyone.

After yesterday’s check up at the hospital, we found out that Seabass’ surgery hasn’t worked. Although the cyst has decreased a few millimetres, his head circumference has increased another centimetre. He now needs to have a shunt fitted, which is getting done tomorrow. We are off to hospital again today to check in and sort out all the paperwork.

Hopefully this will be the last time our little man’s head needs to be cut open xx

Seabass Arrives

The little man made his appearance into the world on 22nd June and we were lucky enough to be able to bring him home, rather than having him rushed off to the children’s hospital. We’ve had almost 4 weeks at home with our beautiful boy now. Tinkerbell loves him and has been lovely with him which has been great. 
We visited the neurosurgeon a couple of weeks ago and she was happy for Seabass to remain at home and to wait until he was a bit older to perform any surgery. Unfortunately though his head measurements have increased a bit quicker than expected so we are now on our way to the hospital for Seabass to have some surgery. 
He is having endoscopic surgery to hopefully get the ventricle communicating with the cyst and get the fluid absorbing. If this doesn’t work then they’ll put a shunt in. 
Wish us luck. Will let you know how today goes.