Today I am angry. Angry in a good way though, if that is possible. Angry in a way that makes me want to do positive things.
This afternoon I asked my partner if he thought Bump was in pain because of his cyst. He said he’d wondered that too. So, as I do with these things, I “Googled” it. I was expecting to find either highly varied answers, or just nothing at all due to the limited information available on arachnoid cysts. What I wasn’t expecting was to find one woman’s honest account of living with an arachnoid cyst. I have seen the website before, but not read the whole thing. Google search though brought up a specific page of the website, it was her writing about what to expect with people who suffer from this. Granted, information like this is helpful. The part I don’t find helpful is telling you to seriously consider an abortion if you find out your unborn baby has one of these cysts and to “make another baby that will be healthy”. This is what led to the title of my blog, when I told my friend what I’d read his response was “yeh cos its dead easy, just order one up like a pizza – one baby please, hold the problems I don’t like those.” I agree with what he says. You don’t get rid of a baby simply because it’s not considered “healthy”. What is classed as “healthy” anyway? Where would you draw the line on this?
After getting myself wound up about what she’d said, I clearly thought I needed to wind myself up even more so I did a search on her. Another page I found just left me speechless – whilst talking about doctors performing surgeries she has said “Please… if you are reading this and you are pregnant love your baby enough to keep it from being tortured in this manner and terminate the pregnancy.”
If we all terminate our pregnancies because of these cysts, then how are research/medicine/surgical procedures meant to advance? How are people meant to become more aware of this condition if we just get rid of anyone who might suffer from it? Or is it babies that have cysts in a certain position/place that we need to get rid of?
Personally, I don’t think she should become a motivational speaker.
Whilst I appreciate I have no understanding about what she goes through, and other people will find what she writes useful, I wonder if she has any understanding about what it is like to have to decide whether your unborn baby gets to live or die.
I don’t want to be told to get rid of my baby if I love it. If we decide that our baby will have some quality of life and want to give him that chance, based on what we’re told by the doctors, does that mean we love our baby less?
I don’t want negativity when having to make the biggest decision of our lives. I want more positive stories, like the ones about Laughlan Dougall and Jade Lucas who still enjoy their lives despite suffering from arachnoid cysts.
This lady has done a lot of work and research for people with arachnoid cysts, I don’t dispute that. Perhaps, though, she should not publish her advice on how to treat unborn babies. Especially not when there are people like Laughlan and Jade around. I’m pretty certain they don’t wish their parents had terminated them.
With this in mind, I have decided to start my own website/foundation. It will be positive and informative and hopefully offer some guidance and comfort to parents of unborn babies who are going through what we are now. It will show stories of people who are living with this. Hopefully it will help with more research into these cysts.